Rett Syndrome Awareness

Rett Syndrome Awareness training provides healthcare professionals with the knowledge and understanding to support people living with Rett Syndrome.

  • Suitable for: Health and social care staff

  • Delivery method: Face-to-face / Virtual training

  • Course length: ½ day

  • Max attendees: 15 delegates

Who is this training for?

This CPD training course is designed for organisations wishing to train 8 or more staff members and can be delivered either face-to-face, or as an online webinar. For further information, please contact us on 02920 494 969 or make an online enquiry.

Course information

Rett Syndrome Awareness Training provides an introduction to Rett Syndrome and how the condition may affect daily life, communication, health and physical support needs. The course explores the individual experience of Rett Syndrome, recognising that abilities, symptoms and support needs can vary from person to person and change throughout the lifespan.

Delegates will explore communication and interaction, including non-verbal communication, eye gaze and other communication methods, as well as supporting choice, control and consent. The course also considers health and physical support, including seizures, breathing and cardiac considerations, nutrition and swallowing, mobility, positioning, pain and gastrointestinal concerns.

A strong emphasis is placed on recognising changes from a person's usual presentation, understanding their individual care needs and promoting quality of life through safe, respectful and person-centred support

Learning outcomes

By the end of this training, delegates will be able to:

  • Understand what Rett Syndrome is and how it may affect daily life
  • Recognise that Rett Syndrome can present differently between individuals
  • Understand common symptoms and associated support needs
  • Recognise the importance of knowing the individual, their routines and usual presentation
  • Understand communication challenges and the importance of non-verbal communication
  • Identify different communication approaches, including eye gaze and communication aids
  • Support choice, control and consent in everyday care
  • Recognise key health and physical support considerations
  • Understand the importance of following individual eating, drinking and swallowing plans
  • Recognise considerations around mobility, positioning and equipment
  • Identify changes in presentation that may indicate pain, illness or deterioration
  • Understand when concerns should be documented and escalated
  • Support quality of life, dignity, participation and person-centred care
  • Recognise the importance of working with families, carers and multidisciplinary teams.

Delivery methods

Acute Training Solutions strive to deliver an engaging and informative learning experience in a safe and inclusive environment. All of our training courses are delivered by experienced healthcare professionals across the UK. This healthcare training course is available via the following delivery methods:

  • Face-to-face training (½ day): This course can be delivered to a maximum of 15 delegates and can be tailored to meet your organisation's specific needs.

  • Virtual training (½ day): This course can be delivered via Zoom or MS Teams to a maximum of 20 delegates. Virtual sessions are most commonly used as refresher training sessions. Please note that there is no hands-on practical element in this training; practical elements are displayed using video examples.

Course FAQs

Rett Syndrome is described in the presentation as a rare genetic neurological condition that affects brain development and nervous system function. It is most often associated with changes in the MECP2 gene and is mostly diagnosed in girls, although boys can be affected.

The course is designed for groups of healthcare professionals and teams within an organisation who support people living with Rett Syndrome or who would benefit from developing their understanding of the condition and its associated care needs.

The course covers what Rett Syndrome is and how it can affect daily life, communication and interaction, consent and capacity, recognising deterioration, health and physical support, and promoting quality of life through person-centred care.

Yes. Communication is a key part of the course, including speech and expressive communication, eye gaze, facial expressions, body movement, vocalisations and other non-verbal cues. It also explores communication aids such as eye-gaze technology, symbols, communication books, switches and adapted devices.

Yes. The course covers a range of considerations, including seizures or seizure-like episodes, breathing irregularities, sleep disturbance, cardiac concerns, eating and swallowing, reflux, constipation, scoliosis, pain, osteoporosis and mobility changes.

Yes. Delegates learn to recognise potentially significant changes in areas such as alertness, mood, sleep, eating and drinking, swallowing, weight, seizure patterns, pain, movement, skin, posture and continence. The course emphasises documenting changes and seeking advice early.

The course provides awareness and understanding to support safe, person-centred care. It does not replace individual care plans, clinical assessment, professional judgement or organisational policies and procedures. The presentation specifically reminds delegates that training should complement, rather than replace, their existing working practices and policies.

Yes. We deliver Rett Syndrome Awareness training nationwide and can provide training at your premises or through alternative delivery methods where appropriate.

Yes. Certificates are provided following successful completion of the course.

Make an enquiry

Acute Training Solutions can provide tailored healthcare training to your organisation or team. To find out more about this course, please contact us on 02920 494 969 or complete the short online form below. A member of our team will be in touch right away.